Privacy Policy
This Privacy Policy discloses the privacy practices for idd.nationalcoreindicators.org, the primary website of National Core Indicators – Intellectual and Developmental Disabilities (NCI-IDD). By using this website, you are consenting to our collection and use of information in accordance with this Privacy Policy.
This Privacy Policy governs our data collection, processing and usage practices. It also describes your choices regarding use, access and correction of your personal information. If you do not agree with the data practices described in this Privacy Policy, you should not use the Website.
We periodically update this Privacy Policy. We will post any privacy policy changes on this page and, if the changes are significant, we will provide a more prominent notice by sending you an email notification.
While we will notify you of any material changes to this Privacy Policy, we encourage you to review this Privacy Policy periodically. We will also keep prior versions of this Privacy Policy in an archive for your review.
If you have any questions about this Privacy Policy or our treatment of the information you provide us, please write to us by email at hli.hsri@gmail.com or by mail to NCI-IDD, 2336 Massachusetts Avenue, Massachusetts 02140.
What information do we gather about you?
We and our third-party vendors collect certain information regarding your use of idd.nationalcoreindicators.org, such as your IP address and browser type. Your session and the pages you visit on NCI-IDD will be tracked, but you will remain anonymous. We may use your IP address to identify the general geographic area from which you are accessing NCI-IDD. We connect data from different systems but do not link IP addresses to any personal information. We may also collect other information as described in this policy.
“Personal Information”
This refers to any information that you voluntarily submit to us and that identifies you personally, including contact information, such as your name, email address, address, phone number, and other information about yourself or your business. Personal Information can also include information about any transactions, both free and paid, that you enter into on the Website, and information about you that is available on the internet, such as from Facebook, LinkedIn, Twitter and Google, or publicly available information that we acquire from service providers.
Personal Information also includes:
Navigational Information where such information can directly or indirectly identify an individual. Navigational information refers to information about your computer and your visits to this website such as your IP address, geographical location, browser type, referral source, length of visit, and pages viewed.
Transaction Information
NCI-IDD automatically receives and records some information from your browser when you visit the site, such as your IP address, cookies and data about which pages you visit on the site through the use of log files provided by our third-party tracking-utility partners. This information helps NCI-IDD analyze and understand how the site works for users. Information that is gathered includes, but is not limited to, information about how you interact with NCI-IDD, information about how you use NCI-IDD’s sites, email, other communications, and applications.
Mobile Location Information
If you have permitted your mobile or other location-aware device to transmit location data, NCI-IDD collects Mobile Location.
How NCI-IDD Collects Personal Information
If and when you are prompted and to provide Personal Information (including Contact Information) when you use NCI-IDD or otherwise interact with the Site or contact NCI-IDD.
When you use the Site
For example, NCI-IDD may track the pages you view, the methods of communication that may be offered on or through the Site from time to time. NCI-IDD uses cookies and related technologies to collect information about your computer and your interaction with the Site and our partner websites.
If and when you contact NCI-IDD via telephone, email, online form, or other methods of communication
Lawful basis for NCI-IDD’s processing of your Personal Information
As applicable, the following is the lawful basis NCI-IDD relies on to process your Personal Information:
Legitimate Interest means the interest of NCI-IDD in conducting and managing its business to enable it to give you best service/product and the most optimized and secure interaction. NCI-IDD makes sure to weigh any potential impact on you (both positive and negative) and your rights before we process your Personal Information for our legitimate interest. Unless NCI-IDD has your consent or is otherwise required or permitted to by law, it will not use your Personal Information for activities where the impact on your overrides our interests.
By clicking submit on any of our online website forms, you consent to allow NBSS to store and process the personal information submitted. We’ll only use your personal information to administer your account and to provide the services/products you requested from us.
How is this information collected and how can you opt out?
Google, Hubspot, Occasion, WordPress and other third parties may use cookies and similar technologies to collect or receive information from this website and elsewhere on the internet and use that information to provide measurement services and target ads. For more information on Google Analytics, Hubspot, Occasion, or WordPress, consult their terms of use, privacy practices, and ads settings. You can opt out of the collection and use of this information through tools like the Network Advertising Initiative opt-out page.
Cookies
Cookies are small files that are stored on your computer (unless you block them). We use cookies to understand and save your preferences for future visits and compile aggregate data about site traffic and site interaction so that we can offer better site experiences and tools in the future. You may disable cookies through your individual browser options or you can opt out of the collection and use of this information through tools like the Network Advertising Initiative opt-out page.
Other Websites and Cookies
This website may contain links to other websites. We are not responsible for the privacy practices or the content of such websites.
Cookies may be set by parties other than us. These “third-party cookies” may, for example, originate from websites such as YouTube, Twitter, Facebook, Google, Hubspot, or other social media services for which idd.nationalcoreindicators.org has implemented “plug-ins.” Since the cookie policies of these sites change over time, you should determine their policies by visiting the privacy policy pages of these sites directly.
Information Protection
This site has reasonable security measures in place to help protect against the loss, misuse, and alteration of the information under our control. However, no method of transmission over the Internet or method of electronic storage is 100% secure.
How NCI-IDD Uses Personal Information
We may use Personal Information to enhance to enhance your user experience, to help us better understand you, to help us customize offers, blog topics, or posts that may be of interest to you, and to help us otherwise enhance the Site.
NCI-IDD uses Personal Information to:
- Identify and authenticate users
- Facilitate transactions
- Operate and improve the Site
- Connect with you on social media (such as Facebook, LinkedIn, or Twitter)
- Contact you by phone or email
- Personalize and continually improve users’ experience
- Track transactions and perform other analytics
Manage NCI-IDD everyday business needs such as Site administration, communication management, analytics, fraud prevention, enforcement of our corporate reporting obligations, Terms of Use, or to comply with the law.
When and Why NCI-IDD Discloses Personal Information
NCI-IDD will not disclose your Personal Information to third parties without your explicit consent, except as specified in this Privacy statement. NCI-IDD will disclose your Personal Information when:
Working with companies and service providers (i.e. HubSpot, Occasion, WordPress, or other companies that process billing, website hosting, or analytics performance in furtherance of the purposes described in Section 3 (“How NCI-IDD Uses Personal Information”) above.
NCI-IDD employs other companies to perform tasks on our behalf and therefore we must share your Personal Information with these companies to provide services to you. Examples include but are not limited to analyzing data ab providing marketing assistance.
Protecting the rights, property or safety of others, investigate fraud, respond to a government request
This Privacy Statement only governs when and why NCI-IDD discloses Personal Information. This Privacy Statement does not apply to the practices of third parties that NCI-IDD does not own or control, or individuals that we do not employ or manage. The use of your Personal Information by third parties that you access through the Site is governed by the privacy policies of such parties and is not subject to our control. NCI-IDD is not responsible for the privacy or security practices of other websites on the Internet, even those linked to or from the NCI-IDD Site. NCI-IDD encourages you to ask questions before you disclose your personal information to others.
Personal Information Retention
To determine the appropriate retention period, NCI-IDD considers the type and volume of the information, the negatives that can result from un-permitted access to such information, and why NCI-IDD gathers such information.
Tracking Technologies – Indirect Data Collection
NCI-IDD implements cookies to store user information and track user activities. User’s web browser places cookies on their hard drive for record-keeping purposes and sometimes to track information. Cookies enable NCI-IDD to monitor your activity across sessions of interaction between your device and the Site. Please see Choice and Control, for information on how to refuse cookies.
Choice and Control
While NCI-IDD does need to gather certain information to make your NCI-IDD experience personalized and to conduct transactions for you, NCI-IDD wants to give you the ability to control how your information is provided and shared.
Email Preferences
For various reasons, NCI-IDD may contact you about our services or your activity.
Cookies and Tracking Devices
Upon visiting the NCI-IDD site for the first time (or after a clearing a browser’s cache) you will be shown a notification. You may click “accept” to clear the notification. However, we will, by default, use cookies when you visit our site.
The notification states: “This website uses cookies to remember you and improve your experience. To find out more see our Privacy Policy.”
If you would like to decline cooking tracking, you can manage how your browser handles cookies and other tracking devices by adjusting the privacy and security settings on your browser. If accessing NCI-IDD by a mobile device, you may manage the information your mobile device shares, such as cookies, tracking technologies, and location information, by adjusting your mobile device privacy and security settings.
EU Data Subject Rights
In certain circumstances, you have the following rights under data protection laws in relation to your Personal Information:
Request access to your Personal Information (commonly known as a “data subject access request”)
This enables you to receive a copy of the Personal Information NCI-IDD holds about you and to check that NCI-IDD is lawfully processing it.
Request correction of the Personal Information
This enables NCI-IDD to have any incomplete or inaccurate data held about you corrected, though NCI-IDD may need to verify the accuracy of the new data provided.
Request erasure of Personal Information
This enables you to ask NCI-IDD to delete or remove Personal Information where there is no good reason for NCI-IDD continuing to process it. You also have the right to ask NCI-IDD to delete or remove your Personal Information where you have successfully exercised your right to object to processing (see below), where NCI-IDD may have processed your information unlawfully or where NCI-IDD is required to erase your personal data to comply with local law. Note, however, that NCI-IDD may not always be able to comply with your request of erasure for specific legal reasons which will be notified to you, if applicable, at the time of your request.
Object to gathering of your Personal Information
Where NCI-IDD is relying on a legitimate interest (or those of a third party) and there is something about your particular situation which makes you want to object to gathering on this ground as you feel it impacts on your fundamental rights and freedoms. You also have the right to object where NCI-IDD is gathering your Personal Information for direct marketing purposes. In some cases, NCI-IDD may demonstrate that it has compelling legitimate grounds to gather your information which override your rights and freedoms.
Request restriction of gathering of your Personal Information
This enables you to ask NCI-IDD to suspend the gathering of your personal data in the following scenarios: (a) if you want NCI-IDD to establish the data’s accuracy; (b) where NCI-IDD use of the data is unlawful but you do not want us to erase it; (c) where you need us to hold the data even if NCI-IDD no longer requires it as you need it to establish, exercise or defend legal claims; or (d) you have objected to our use of your data but NCI-IDD needs to verify whether it has overriding legitimate grounds to use it.
Request the transfer of your Personal Information to you or to a third party
NCI-IDD will provide to you, or a third party you have chosen, your Personal Information in a structured, commonly used, machine-readable format. Note that this right only applies to automated information which you initially provided consent for NCI-IDD to use or where NCI-IDD used the information to perform a contract with you.
Withdraw consent at any time where NCI-IDD is relying on consent to gather your Personal Information
However, this will not affect the lawfulness of any gathering carried out before you withdraw your consent. If you withdraw your consent, NCI-IDD may not be able to provide certain services to you. NCI-IDD will advise you if this is the case at the time you withdraw your consent.
Withdrawing Consent
If NCI-IDD is relying on your consent for certain activities, you have the right to withdraw you sent at any time by contacting us at hli.hsri@gmail.com.
Contact NCI-IDD
If you have questions or suggestions, you may contact NCI-IDD by sending an email to hli.hsri@gmail.com.
From time to time, we may receive Personal Information about you from third party sources including partners with which we offer co-branded services or engage in joint marketing activities, and publicly available sources such as social media websites.
What do we use your information for?
We use the information we gather from you for systems administration purposes, abuse prevention, and to track user trends, and for the other purposes described in this policy. If you send us an email, the email address you provide may be used to send you information, respond to inquiries, and/or other requests or questions. We will not share, sell, rent, swap, or authorize any third party to use your email address for commercial purposes without your permission.
User information may be shared with third-party vendors to the extent necessary to provide and improve web services or other communications to users. For example, we use third parties such Google Analytics to generate reports on site usage, web traffic, user behavior, and user interests in order to optimize our website for our visitors. We also use geographic, demographic, and interest-based reports of our website visitors to create custom audience and remarketing lists. We prohibit any third parties who receive user information for this purpose from using or sharing user information for any purpose other than providing services for the benefit of our users.
We may also provide your information to third parties in circumstances where we believe that doing so is necessary or appropriate to satisfy any applicable law, regulation, legal process or governmental request; detect, prevent or otherwise address fraud, security, or technical issues; or protect our rights and safety and the rights and safety of our users or others.
Effective Date
The effective date of this policy is July 1, 2022.