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National Core Indicators seeks your opinions on research priorities!
The team at National Core Indicators (NCI) is looking to hear directly from people with personal and professional experience with long-term services and supports about priority reSearch topics. The anonymous survey asks respondents to rate the importance of reSearching various individual outcomes and workforce-related topics, and should take less than 10 minutes to complete. The […]
For Researchers
How to request access to NCI-IDD datasets and survey tools The National Association of State Directors of Developmental Disabilities Services (NASDDDS) and Human Services ReSearch Institute (HSRI), as collaborators on the National Core Indicators-Intellectual and Developmental Disabilities (NCI-IDD), engage in reSearch activities, projects and studies to generate knowledge and information of relevance to state agency […]
Data Briefs, Highlights & Spotlights
Data for Action Last updated: April 23rd, 2025
ANCOR Webinar featuring NCI data
Data and new reSearch are critical tools in addressing the key challenges facing our workforce. Chronic instability in the Direct Support Professional (DSP) workforce disrupts continuity, predictability, and trust for people with I/DD. The DSP workforce often faces challenges related to poverty that go undiscussed. This webinar shared insights from several reSearch projects, including NCI-IDD […]
SciTube video on NCI-IDD employment data
HSRI partnered with SciTube to create a video based on recent reSearch with NCI-IDD employment data. The video highlights key takeaways about employment among people with IDD, with emphasis on the transformative power of including person-centered employment goals in enhancing employment outcomes. The video is intended to be a more accessible product to describe the findings of […]
Money Follows The Person and the HCBS Quality Measure Set
The Centers for Medicare & Medicaid Services (CMS) recently issued guidance to Money Follows the Person (MFP) state grantees on requirements to report quality measures from the CMS home and community-based services (HCBS) quality measure set. Starting in 2026, these requirements will apply to all HCBS waivers that MFP grantee states operate (1915(c), 1915(i), 1915(j), […]
NASDDDS Member Education Webinar: NCI State of the Workforce®-IDD and Using Data to Inform Solutions
The National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Human Services ReSearch Institute (HSRI) recently released the NCI State of the Workforce ®-IDD 2022 Survey Report. This webinar, held on March 21, 2024, discussed the survey and how it works and showed the latest data. Two states (CO and OR) presented […]
NCI-IDD 2022-23 Child Family Survey (CFS) Phone Mode Pilot Report
The NCI-IDD team worked with the state of Texas to pilot test audio telephone administration of the Child Family Survey. Through examination of the surveyor and respondent feedback data, we see that respondentsrated the experience of doing the survey by phone as relatively easy. However, qualitativeinformation indicated numerous barriers, challenges, and frustrations related to the […]
Just Released:2021-22 Family Survey State Reports
We are excited to announce the release of our 2021-22 Family Survey State Reports. These include: These comprehensive reports are the result of months of hard work, data collection, and analysis. A special thanks to Eric Lam for his tireless efforts in compiling these reports!
National Institutes for Health designates people with disabilities as a health disparity population
Date: 09/2023 Author(s): Val Bradley, President Emerita, Human Services ReSearch Institute On September 26, 2023, the 50th anniversary of the Rehabilitation Act, the National Institutes for Health formally designated people with disabilities as a population experiencing health disparities. For many years, the disability community has advocated for this designation, which is crucial to expanding disability-related […]