National Core Indicators seeks your opinions on research priorities!

The team at National Core Indicators (NCI)  is looking to hear directly from people with personal and professional experience with long-term services and supports about priority reSearch topics. The anonymous survey asks respondents to rate the importance of reSearching various individual outcomes and workforce-related topics, and should take less than 10 minutes to complete. The […]

For Researchers

How to request access to NCI-IDD datasets and survey tools The National Association of State Directors of Developmental Disabilities Services (NASDDDS) and Human Services ReSearch Institute (HSRI), as collaborators on the National Core Indicators-Intellectual and Developmental Disabilities (NCI-IDD), engage in reSearch activities, projects and studies to generate knowledge and information of relevance to state agency […]

Money Follows The Person and the HCBS Quality Measure Set

The Centers for Medicare & Medicaid Services (CMS) recently issued guidance to Money Follows the Person (MFP) state grantees on requirements to report quality measures from the CMS home and community-based services (HCBS) quality measure set. Starting in 2026, these requirements will apply to all HCBS waivers that MFP grantee states operate (1915(c), 1915(i), 1915(j), […]

NASDDDS Member Education Webinar: NCI State of the Workforce®-IDD and Using Data to Inform Solutions

The National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Human Services ReSearch Institute (HSRI) recently released the NCI State of the Workforce ®-IDD 2022 Survey Report. This webinar, held on March 21, 2024, discussed the survey and how it works and showed the latest data. Two states (CO and OR) presented […]

NCI-IDD 2022-23 Child Family Survey (CFS) Phone Mode Pilot Report

The NCI-IDD team worked with the state of Texas to pilot test audio telephone administration of the Child Family Survey. Through examination of the surveyor and respondent feedback data, we see that respondentsrated the experience of doing the survey by phone as relatively easy. However, qualitativeinformation indicated numerous barriers, challenges, and frustrations related to the […]

Just Released:2021-22 Family Survey State Reports

We are excited to announce the release of our 2021-22 Family Survey State Reports. These include: These comprehensive reports are the result of months of hard work, data collection, and analysis. A special thanks to Eric Lam for his tireless efforts in compiling these reports!

National Institutes for Health designates people with disabilities as a health disparity population

Date: 09/2023 Author(s): Val Bradley, President Emerita, Human Services ReSearch Institute On September 26, 2023, the 50th anniversary of the Rehabilitation Act, the National Institutes for Health formally designated people with disabilities as a population experiencing health disparities. For many years, the disability community has advocated for this designation, which is crucial to expanding disability-related […]

Perspectives: NDEAM and the Role of Vocational Rehabilitation Counselors (Part 1 of 2)

This webinar will showcase the key findings about access to services, community inclusion and participation, health and wellness, rights and respect, and person-centered planning across the populations who participate in NCI.

Effects of person-centered planning and practices on the lives of adults with IDD

NCI team members recently published the article “Effects of person-centred planning and practices on the health and well-being of adults with intellectual and developmental disabilities: a multilevel analysis of linked administrative and survey data.” in the Journal of Intellectual Disability ReSearch. (https://onlinelibrary.wiley.com/doi/10.1111/jir.13015) Here is an infographic illustrating the major findings of the paper. Here below is a plain-language […]

Revealing Insights on Quality of Supports and Self-Reported Outcomes Among People with Disabilities

[CAMBIRDGE, MA] – The National Core Indicators (NCI) program announces the release of the National Core Indicators Intellectual and Developmental Disability (NCI-IDD) – In-Person Survey (IPS) National Report for the year 2021-2022. This comprehensive report is based on data collected by27 states from 13,559 adults receiving long term services and supports (LTSS) from their state […]