National
2020-21 National In-Person Survey Report: Access
2020-21 National In-Person Survey Report: Choice
2020-21 National In-Person Survey Report: Community Inclusion
2020-21 National In-Person Survey Report: Demographics
2020-21 National In-Person Survey Report: Employment
2020-21 National In-Person Survey Report: Health
2020-21 National In-Person Survey Report: Medication
2020-21 National In-Person Survey Report: Relationships
2020-21 National In-Person Survey Report: Rights and Respect
2020-21 National In-Person Survey Report: Safety
2020-21 National In-Person Survey Report: Satisfaction
2020-21 National In-Person Survey Report: Self-Direction
2020-21 National In-Person Survey Report: Service Coordination
2020-21 National In-Person Survey Report: Wellness
2020-21 National In-Person Survey Report: National Quality Forum (NQF) Measures
The 2020-21 National In-Person Survey Report is available.
State
The 2020-21 State In-Person Survey Reports are available below.
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National
The 2020-21 National Family Survey Reports are available.
State
The 2020-21 State Family Survey Reports are available as “online reports”.
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State of the Workforce Survey
(Formerly called the ‘Staff Stability Survey’)
The annual NCI-IDD State of the Workforce Survey collects comprehensive data on the Direct Support Professional (DSP) workforce providing direct supports to adults (age 18 and over) with intellectual and developmental disabilities (IDD). The goal of the survey and the resulting data is to help states examine workforce challenges, identify areas for further investigation, benchmark their workforce data, measure improvements made through policy or programmatic changes, and compare their state data to those of other states and the NCI-IDD average.
States across the country have used the NCI-IDD State of the Workforce Survey data to demonstrate the critical nature of the DSP workforce crisis to legislators and policymakers. States are also engaging in deeper examinations of the data to determine the impetuses and drivers of workforce challenges. Advocates and researchers are analyzing the data to inform research into the workforce crisis and determine strategies to address the issues. The release of the 2020 State of the Workforce Survey data from 26 states and the District of Columbia marks another opportunity for state developmental disability agencies, advocates, and researchers to work together to determine the best strategies to address the DSP workforce crisis. Moreover, data from the COVID-19 survey supplement can allow states to examine gaps and strengths in emergency responses and gain a better understanding of how providers experienced the pandemic.
State of the Workforce in 2021 Survey Report
State of the Workforce in 2021 Survey Report INFOGRAPHIC
For reports from other survey years, check out the Report Library.
A total of 26 states plus the District of Columbia administered the 2020 NCI-IDD State of the Workforce Survey/ Staff Stability Survey. All told, 2,987 provider agencies are included in this report.
2020 NCI-IDD Staff Stability Survey Report
2020 NCI-IDD Staff Stability Survey Report – COVID-19 SUPPLEMENT
2020 NCI-IDD Staff Stability Survey Report INFOGRAPHIC
For reports from other survey years, check out the Report Library.
Data for Action
Last updated: October 12th, 2022
Using NCI-IDD and NCI-AD Data to Assess Progress with Person-Centered Requirements in the CMS Settings Rule A Hypothetical Case Study
This joint NCI and NCAPPS data brief presents a hypothetical case study of how states can use National Core Indicator (NCI) data (NCI-IDD and NCI-AD) to look at system-level person-centered planning and practices and get an idea of statewide system alignment with the HCBS Settings Rule.
What Do NCI-IDD Data Tell Us About How Many People with IDD Receiving State Services Are Enrolled in College or University?
- Without the advantage of education and training beyond high school, the ability of people with IDD to escape poverty and find employment is diminished.
- Though the numbers of people who were enrolled in post-secondary education in the NCI IPS for 2020-2021 was very small, the availability of these opportunities is growing.
- According to the results 2020-2021 In-Person Survey (IPS), only slightly more than 3.2% of respondents with intellectual and developmental disabilities (IDD) aged 18-25 were enrolled in a college or university.
What NCI-IDD Data Tells Us About Vacations
- The benefits of vacation are abundant and well-documented, especially for those with IDD, whose social networks and opportunities are often more limited as a result of the enforced uniformity of their daily lives.
- Vacations add to our quality of life and expand our horizons.
- In 2021, while just 44% of the general population vacationed, only one in four people with IDD reported taking a break – a number that ranged by state from 6% to 39%.
What NCI Data Tells Us About the Impact of COVID-19 on Families Who Have a Family Member with IDD Living at Home
COVID-19 is continuing to disrupt the lives of families around the country but poses particular challenges to families who have a child or adult with IDD living at home. Check out this data highlight NCI-IDD Adult Family Survey data from the COVID Supplement implemented in 2020-21. These data demonstrate the impact of COVD-19 on families who have a family member receiving state DD services and living at home.
National Core Indicators®-IDD Family Surveys COVID-19 Supplement National Report Special Edition
In response to the COVID-19 pandemic, NCI-IDD added a state-optional COVID-19 Supplement to all NCI Surveys. The COVID-19 Supplement is intended to support the understanding of the experience of people with disabilities and their families at the beginning of the COVID-19 pandemic, and their interactions with services during that time. Data were collected between July 1, 2020 and June 30, 2021. This Special Edition Report shows individual state and overall national outcomes for the NCI-IDD COVID-19 Supplement questions.
These reports, designed together with self-advocates, highlight topic-specific data in an accessible, easy-to-read format.
2020-21 National In-Person Survey User Friendly Report: Case Management and Staff
2020-21 National In-Person Survey User Friendly Report: Choice and Satisfaction
2020-21 National In-Person Survey User Friendly Report: Employment
2020-21 National In-Person Survey User Friendly Report: Health Access
2020-21 National In-Person Survey User Friendly Report: Rights, Privacy and Safety
2020-21 National In-Person Survey User Friendly Report: Service Plan
2020-21 National In-Person Survey User Friendly Report: Using Internet, Cell Phone, or Smart Phone
2020-21 National In-Person Survey User Friendly Report: Wellness
2020-21 National In-Person Survey User Friendly Report: Community Participation
2020-21 National Adult Family User Friendly Report: Access and Delivery
2020-21 National Adult Family User Friendly Report: Case Management and Support Staff
2020-21 National Adult Family User Friendly Report: Community Participation
2020-21 National Adult Family User Friendly Report: Crisis and Reporting
2020-21 National Adult Family User Friendly Report: Information and Planning
2020-21 National Family/Guardian User Friendly Report: Access and Delivery of Services and Supports
2020-21 National Family/Guardian User Friendly Report: Case Management and Support Staff
2020-21 National Family/Guardian User Friendly Report: Community Participation
2020-21 National Family/Guardian User Friendly Report: Crisis and Reporting
2020-21 National Family/Guardian User Friendly Report: Information and Planning
2020-21 National Child Family Survey User Friendly Report: Access and Delivery
2020-21 National Child Family Survey User Friendly Report: Case Management and Support Staff
2020-21 National Child Family Survey User Friendly Report: Community Participation
2020-21 National Child Family Survey User Friendly Report: Crisis and Reporting
2020-21 National Child Family Survey User Friendly Report: Information and Planning