Survey Reports & Insights

Latest available files are organized by respondent type below (past years' reports in Report Library). Screen reader compatible versions are available by request.
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National

The 2020-21 National In-Person Survey Report is available.

State

The 2020-21 State In-Person Survey Reports are available below.

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National

The 2020-21 National Family Survey Reports are available.

State

The 2020-21 State Family Survey Reports are available as “online reports”.

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State of the Workforce Survey (Formally ‘Staff Stability Survey’)

The annual NCI-IDD State of the Workforce Survey collects comprehensive data on the Direct Support Professional (DSP) workforce providing direct supports to adults (age 18 and over) with intellectual and developmental disabilities (IDD). The goal of the survey and the resulting data is to help states examine workforce challenges, identify areas for further investigation, benchmark their workforce data, measure improvements made through policy or programmatic changes, and compare their state data to those of other states and the NCI-IDD average.

States across the country have used the NCI-IDD State of the Workforce Survey data to demonstrate the critical nature of the DSP workforce crisis to legislators and policymakers. States are also engaging in deeper examinations of the data to determine the impetuses and drivers of workforce challenges. Advocates and researchers are analyzing the data to inform research into the workforce crisis and determine strategies to address the issues. The release of the 2020 State of the Workforce Survey data from 26 states and the District of Columbia marks another opportunity for state developmental disability agencies, advocates, and researchers to work together to determine the best strategies to address the DSP workforce crisis. Moreover, data from the COVID-19 survey supplement can allow states to examine gaps and strengths in emergency responses and gain a better understanding of how providers experienced the pandemic.

Featured Art by Emmanuel Preston

A total of 26 states plus the District of Columbia administered the 2020 NCI-IDD State of the Workforce Survey/ Staff Stability Survey. All told, 2,987 provider agencies are included in this report.

2020 NCI-IDD Staff Stability Survey Report
2020 NCI-IDD Staff Stability Survey Report – COVID-19 SUPPLEMENT
2020 NCI-IDD Staff Stability Survey Report INFOGRAPHIC

For reports from other survey years, check out the Report Library.

Data for Action

Last updated: August 26th, 2022

Using NCI-IDD and NCI-AD Data to Assess Progress with Person-Centered Requirements in the CMS Settings Rule A Hypothetical Case Study

This joint NCI and NCAPPS data brief presents a hypothetical case study of how states can use National Core Indicator (NCI) data (NCI-IDD and NCI-AD) to look at system-level person-centered planning and practices and get an idea of statewide system alignment with the HCBS Settings Rule.


What NCI-IDD Data Tells Us About Vacations

  • The benefits of vacation are abundant and well-documented, especially for those with IDD, whose social networks and opportunities are often more limited as a result of the enforced uniformity of their daily lives.
  • Vacations add to our quality of life and expand our horizons.
  • In 2021, while just 44% of the general population vacationed, only one in four people with IDD reported taking a break – a number that ranged by state from 6% to 39%.

What NCI Data Tells Us About the Impact of COVID-19 on Families Who Have a Family Member with IDD Living at Home

COVID-19 is continuing to disrupt the lives of families around the country but poses particular challenges to families who have a child or adult with IDD living at home. Check out this data highlight NCI-IDD Adult Family Survey data from the COVID Supplement implemented in 2020-21. These data demonstrate the impact of COVD-19 on families who have a family member receiving state DD services and living at home.

National Core Indicators®-IDD Family Surveys COVID-19 Supplement National Report Special Edition
In response to the COVID-19 pandemic, NCI-IDD added a state-optional COVID-19 Supplement to all NCI Surveys. The COVID-19 Supplement is intended to support the understanding of the experience of people with disabilities and their families at the beginning of the COVID-19 pandemic, and their interactions with services during that time. Data were collected between July 1, 2020 and June 30, 2021. This Special Edition Report shows individual state and overall national outcomes for the NCI-IDD COVID-19 Supplement questions.

These reports, designed together with self-advocates, highlight topic-specific data in an accessible, easy-to-read format.