What’s New

New Data Highlight Released: What NCI-IDD Data Tells Us About Vacations

August 26, 2022

Stock photo of vacation-related objects: straw hat, sunglasses, camera, and an orange-colored iced drink
  • The benefits of vacation are abundant and well-documented, especially for those with IDD, whose social networks and opportunities are often more limited as a result of the enforced uniformity of their daily lives.
  • Vacations add to our quality of life and expand our horizons.
  • In 2021, while just 44% of the general population vacationed, only one in four people with IDD reported taking a break – a number that ranged by state from 6% to 39%.

Published! New peer-reviewed article on Frontier

August 23, 2022

frontiers journal logo

This article provides historical context on the evolution of performance measures for system improvement, examines the perspectives and insights of state public managers on the use and utility of NQF-endorsed outcome measures from the NCI®-IDD In-Person Survey (IPS) for quality improvement, and discusses the necessity of ensuring that outcome measures align with public policy goals.


NCI-IDD 2022 Annual Meeting and 25th Anniversary

August 5, 2022

Baltimore MD. August 3-4, 2022

On August 2, NCI admirers, veterans and friends joined together at the National Aquarium to toast NCI’s 25 years of measuring DD system quality and performance.  It was a fun evening of laughs, memories and good food and drink. 

On August 3-4, 2022, NCI-IDD held the 2022 NCI-IDD Annual Meeting. About 60 people came together to talk all things NCI-IDD, such as sharing strategies for survey administration, discussing challenges, examining state data-dissemination resources, and understanding federal quality measurement initiatives. Everyone is energized for the upcoming survey cycle. 


NCI®-IDD & NCI-AD™ measures included in first-ever HCBS Quality Measure Set

July 25, 2022

On Thursday, July 21, CMS released a State Medicaid Director Letter providing guidance for the first-ever HCBS Quality Measure Set. This letter was the first of two planned guidance documents from CMS related to the measure set. 

As noted in the State Medicaid Director Letter, CMS provides states flexibility to select measures from the consumer survey of their choice from the following validated tools: HCBS CAHPS®, and POM®, and the National Core Indicators Surveys: NCI®-IDD, NCI-AD™.

The significant inclusion of NCI®-IDD & NCI-AD™ within this national measure set is a testament to the vision, dedication and leadership of state human service systems, NCI staff and staff at HSRI, NASDDDS, and ADvancing States. These entities have continued to emphasize the importance of a robust quality monitoring program that ensures that the experiences of people who access LTSS are at the forefront of quality improvement efforts. NCI partners have consistently expressed to our federal partners how NCI measures align with stakeholder and state priorities and expectations for quality and monitoring.

As CMS noted in this communication, quality measures will continue to be developed and enhanced. We are committed to further measure development and testing to ensure that NCI remains a valuable and valued tool that supports states in improving quality LTSS.


Released! 2020-21 User Friendly Reports

June 26, 2022

Check out the 2020-21 National NCI-IDD In-Person Survey and Family Survey User Friendly Reports. These reports, designed together with self-advocates, highlight topic-specific data in an accessible, easy-to-read format.


How Much Do Direct Support Professionals Make? Putting Wages in Context

April 13, 2022

Webinar Recap: Institute on Community Integration (ICI) Policy Forum

  • Low wages are a major factor contributing to the direct support workforce crisis. This webinar discusses the recent Policy Research Brief, which compared wages of direct support professionals (DSPs) to what people earn in other similar professions.
  • It also puts them in context by comparing DSP wages to living wages—the cost of living based on typical expenses that meet minimum standards of living.
  • ICI’s Julie Bershadsky moderated this forum. The discussants were Dorothy Hiersteiner from the NCI-IDD team at HSRI and Mary Lou Bourne from Management Support Solutions.
  • The recording of the ICI Policy Forum held on April 6, 2022 and the slides are now available

Released! NCI-IDD COVID-19 Supplements

February 25, 2022

A re-imagined painting of Mona Lisa wearing a face mask, holding a bottle of hand sanitizer and toilet paper rolls

In response to the national COVID-19 public health emergency, we are pleased to announce that data is now available from COVID-19 Supplements to all NCI-IDD surveys. The COVID-19 Supplements were optional for states, and were intended to support the understanding of the experience of people with intellectual and developmental disabilities (IDD), their families, provider agencies, and the DSP workforce at the beginning of the COVID-19 pandemic. Data were collected between July 1, 2020 and June 30, 2021. These survey findings reflect the far-reaching effects of the pandemic on IDD supports throughout our nation and inform states as they plan for the future.